Beyond the pale folklore, family, and the mystery of our hidden genes
2015
Restricted EAudiobook (NNELS)
The story begins on St. Stephen's Day, 2010, in St. John's, NL, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. After three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide.
Item Details
Edition: First edition.
Description:
- digital files : DAISY 2.02, .txt
- digital Digital recording
- data file
Other Title: Beyond the pale [restricted eText (NNELS)] folklore, family, and the mystery of our hidden genes
Notes:
- Synthetic voice.
- Includes bibliographical references and Internet addresses.
- Restricted to use by people with documented print impairment.
- Produced by the National Network for Equitable Library Service (NNELS).
- Vancouver, B.C. : BC Libraries Cooperative, 2015.
- Toronto : Harper Avenue, [2015]
- Original version : 282 pages, [8] pages of plates : illustrations (some colour) 9781443423564 1443423564
- Mode of access: World wide web
Control Number: 1515644
Publisher: Vancouver, B.C. : BC Libraries Cooperative, 2015.Subjects:
- Albinism -- Biography.
- Albinism in animals -- Biography.
- Genetic disorders in children -- Patients -- Family relationships -- Canada.
- Heredity.
- Mothers and daughters -- Canada -- Biography.
- Parents of children with disabilities -- Canada -- Biography.
- People with albinism -- Biography.
- Urquhart, Emily -- Family.
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