ISBN: 9781615199105

Description: 295 pages : illustrations ; 23 cm

Other Title: Stories and advice for 20 long-haulers and experts

Notes: Includes bibliographical references (pages 269-274) and index.

Contents:

• All you need is one person : The birth of a patient community (and what to expect from this book) / by Fiona Lowenstein
• It wasn't the beans and rice: fighting biased health care systems with community care / by Karla Monterroso
• Standing tall (and sitting right back down): living with Dysautonomia / by Heather Hogan
• COVID can't be outpaced: learning pacing and radical rest / by Pato Hebert
• With disability, comes rights: navigating the financial impacts of COVID-19 / by Letícia Soares, Karyn Bishof, and Alison Sbrana
• Closer than they seem: finding a caregiver / by Chimére L. Smith
• The obstacle course: obtaining a diagnosis / by Dona Kim Murphey, MD, PhD, Rachel Robles, and David Putrino
• Down in the well, we will mourn and sing: surviving mental illness / by Morgan Stephens
• Am I making any sense?: navigating cognitive dysfunction / by Terri L. Wilder, MSW, and Yochai Re'em, MD
• Not the only one: talking about menstrual issues / by Monique Jackson
• The search for community: finding peer-to-peer support / by Padma Priya DVL
• Knowledge Is power: navigating long COVID research / by Lisa McCorkell
• Such a powerful love: disabled and chronically ill people and our long fight for justice / by JD Davids and Naina Khanna
• Afterword / Akiko Iwasaki, PhD.

LCCN: 2022027166

Control Number: 3212174

Subjects:

• COVID-19 (Disease) -- Complications -- Popular works.
• COVID-19 (Disease) -- Diagnosis -- Popular works.
• COVID-19 (Disease) -- Patients -- Medical care -- Popular works.
• COVID-19 (Disease) -- Psychological aspects -- Popular works.
• Chronically ill -- Care -- Popular works.

Genre: Instructional and educational works.

Other Authors: Lowenstein, Fiona, editor.