ISBN: 9781615199112

Description:

• 1 online resource
• text file

Notes:

• Electronic book.
• Electronic reproduction. New York The Experiment 2022 Available via World Wide Web.

Contents:

• All you need is one person: the birth of a patient community (and what to expect from this book) / Fiona Lowenstein
• It wasn't the beans and rice: fighting biased health care systems with community care / Karla Monterroso
• Standing tall (and sitting right back down): living with Dysautonomia / Heather Hogan
• COVID can't be outpaced: learning radical rest and pacing / Pato Hebert
• With disability, comes rights: navigating the financial impacts of COVID-19 / Letícia Soares, Alison Sbrana, and Karyn Bishof
• The long haul of undeniable need: finding a caregiver / Chimére L. Smith
• The obstacle course: obtaining a diagnosis / Rachel Robles, Dona Kim Murphey, MD, PhD, and David Putrino, PhD
• Down in the well, we will mourn and sing: surviving mental illness / Morgan Stephens
• Am I making any sense?: navigating cognitive dysfunction / Terri L. Wilder, MSW, and Yochai Re'em, MD
• Not the only one: talking about menstrual issues / Monique Jackson
• Gut instincts: finding peer-to-peer support / Padma Priya
• Knowledge Is power: navigating long COVID research / Lisa McCorkell
• Such a powerful love: disabled and chronically ill people and our long fight for justice / JD Davids and Naina Khanna
• Afterword / Akiko Iwasaki, PhD
• Glossary
• Notes
• Acknowledgments
• Resources
• Index
• About the contributors
• About the editor.

Control Number: 3225979

Subjects:

• COVID-19 (Disease) -- Complications -- Popular works.
• COVID-19 (Disease) -- Diagnosis -- Popular works.
• COVID-19 (Disease) -- Patients -- Medical care -- Popular works.
• COVID-19 (Disease) -- Psychological aspects -- Popular works.
• Chronically ill -- Care -- Popular works.

Genre: Electronic books.

Other Authors:

• Lowenstein, Fiona, contributor, editor.
• OverDrive, Inc., distributor.
• Overdrive.